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What to Expect When You Come For a Research Evaluation


When you first arrive, you will be greeted by one of our staff.  Before participating in research, you must first review the study with staff and give your permission that you agree to do the study - this is called "informed consent." If you are under 18 years of age, your parent (or legal guardian) must agree also.  Research is completely voluntary.  Even if you agree to participate, you may choose to change your mind at any point.  But your participation is important!  It is from research that we are able to learn about young people’s health and illness and you are helping to increase this understanding.  We can work to make changes that might improve lives.


Once you have completed informed consent, you will likely return to the waiting room to fill out some background paperwork.  Within a few minutes, your clinician will come to get you.  The clinician will check if you have any questions and be sure that you understand the research study. The clinician will then conduct our assessment by asking you questions about yourself and your experiences.  There are no right or wrong answers!  Questions will focus on your life, your strengths and weaknesses, and areas of concern.


The clinical interview will take on average about 3 hours. This is a rough estimate.  You will be welcome to take breaks as needed, and the clinician will work at your pace.  At the end of the interview, the clinician will likely schedule another time to talk with you about your symptoms and offer information about treatment options that might be a good fit for you. 


If you are seeing other treatment providers, the clinician may ask for your permission to speak with them.  The purpose of speaking with your other treatment providers is so that the clinician will have as much of your medical history as possible.   The clinician will not share any information about you without your permission. Our goal is to get the best picture of you as possible so we can help better understand you and your symptoms.

Last Updated on Sunday, 23 July 2017 21:54